Out of the ICU and on to San Jose!Posted: June 13, 2012
Devin had been making great progress in the NSICU. They moved him out of the unit last week after spending 3 weeks there. He had been having some trouble with his lungs and had developed pneumonia, which is a very common complication with a spinal cord injury. He has been fighting the pneumonia since his first week hospitalized. He has been awake now for over 2 weeks. His lungs are almost cleared up and he has been working very hard to get off of the ventilator. In fact he spent 4 hours breathing all on his own 2 days ago! Quite an accomplishment, since all of the muscles that typically work to breathe for us, have been paralyzed in Devin. He needs to learn to breathe on his own by using a whole different set of muscles than most of us.
He continues to make progress in moving his right arm. In the 2 weeks that he has been awake he has learned to use his bicep to control his arm movements. Typically we use the bicep and triceps for arm movement, but Devin does not have control of his triceps just yet. His fight manger and good friend Dave bought him an iPad, and he typed his first message on it (to Dave) yesterday with the help of a stylus! Things have been way more relaxed for Devin being out of the ICU unit. He is not having to deal with as much medical staff constantly on him, something that he has been enjoying. His mom and Tayler on the other hand have had a bit more to worry about with him being moved as there is not a 1/1 ratio of nurse to patient on his new floor and if his stats drop or anything goes awry there is not a specially trained nurse right outside of his room at all times. Everyone adjusted pretty well, all things considered. Jacqui and Tayler have also said the bed that is in Devin’s room for visitors is not so comfy.
Today a very exciting step has happened. Devin has been transferred to the Santa Clara Valley medical center in San Jose to be a patient at their nationally recognized and accredited SCI (Spinal Cord Injury) rehab facility! We couldn’t be more excited. He was transferred by ambulance and Jacqui and Tayler are down there too. A wonderful family that our family has been friends with for more than 30 years have been kind enough to let Jacqui and Tayler use their 5th wheel to stay in for the duration of Devin’s rehab stay. Thanks so much to the Lyons family! Devin will be in a special unit within the rehab that takes care of patients that are vent dependent and they take a very special approach to weaning them off the vent. They tell us that with the settings Devin is on and with his injury level that they have a 98% success rate in getting patients off the vent.
I will update as soon as I hear anything about how things are going at rehab. Devin is using his Facebook so if you would like to write him some well wishes, please do!